Jornal de Trauma e Tratamento

The Most Effective Method to Instruct Others about your uncommon illness

Abstract

Shima L

Rare diseases have taken a toll on the health of patients and their families mostly contributing to the shallow knowledge in order to explain the
complexity of the situation to the physician; thereby ending up in late diagnosis and misdiagnosis. The aim of this study was to report the training
needs in the general public health system within the diagnosis, treatment and monitoring of patients with rare diseases and to create awareness
so as to make a better place for such uncommon ailments.